If there's one thing Second Life has taught me, it's that appearances can be deceiving. The sword wielding black cat with large breasts and leather armor turns out to be a male university professor teaching architecture in Amsterdam. The eight-foot gargoyle with glowing yellow eyes reveals she is a single mother of two with a passion for Pacific Rim cuisine. And of course there are all those taking the opposite sex for a spin, the adults posing as children, and those who feel called to role play druids, dragons, and other mythical creatures. So I guess I shouldn't have been surprised to learn that Namav Abramovic's real life story rivals anything in Second Life --- but I was.
I first met Namav at The Heron Sanctuary (now Virtual Ability), an organization dedicated to helping the disabled get into and function well within virtual worlds. I was there to talk about volunteering in Heron's "Open Gates" program, a group started and coordinated by Namav. Imagine my surprise to be greeted by a dark-haired bearded man posing as a camel trader. Sporting a turban and flowing robes, he brought one of the long-legged hump-backed creatures to our meeting, positioning it right beside his chair where it methodically chewed its cud and ogled me with baleful eyes. "Ooookay then," I thought. "What in the world have I gotten myself into here?"
As it turned out, Namav and I enjoyed a stimulating conversation that ran the gamut from politics to rock music with a little bit of Jewish history thrown in for good measure. In fact, so articulate and astute was Namav, that I might never have guessed he had a disability of his own if he hadn't shared the poem below:
Awakened
Awakened from an odd sleep
I see
hopping green lines
go flat,
alarms rattle
a blue-gray hospital room
and nameless nurses scurry,
blur hazy,
a flurry of white movement.
I zoom out,
float above it all,
look down on myself.
Chaos is unplugged,
life's tether snipped,
cold, eerie silence absolute,
not even breathing heard
dead quiet covers all as
movement flashes at bedside
examining the lifeless body
calmly wrong.
I want to go back.
Whip down
view flashes to ceiling.
Memory of death
fades
like any moment
but left me,
an impatience for life
that rarely wanes.
"Did you write this Namav," I asked as I finished reading it for the second time.
"Yep," he replied matter-of-factly. "That really happened."
Later, I pulled the founder of the Heron Sanctuary, Gentle Heron, aside and asked about Namav's health. "Namav has a form of muscular dystrophy," she explained. "He has been on mechanical ventilation 24/7 since he was 13, and uses a gastric tube for feeding. The only movement he has in his body is in his left thumb. If a trackball mouse is positioned perfectly under his hand, he can use it and an onscreen keyboard to type and function in Second Life."
The only movement he has? As she went on typing, giving me links to Namav's blog and posts in Wikipedia, my mind struggled to imagine what it must be like to be totally dependent on the care of others. Only his thumb?! I just couldn't seem to get my mind around that simple fact. What if your nose itched or you needed a drink of water? Worse yet, what might happen if the ventilator malfunctioned, the electricity went out, or someone forgot to suction a tube?
Later, on Namav's blog, I learned that he (Nick DuPree in real life) was not only an honors English student in college, but an advocate for the disabled in his home state of Alabama. Launching what became known as "Nick’s Crusade," he successfully fought to have home care continued for ventilator-dependent Alabamians once they turned 21. Moreover, Namav has not allowed his disability to define him. In Second Life he regularly works as a paid DJ, coordinates the efforts of volunteers at the sanctuary, and (though still shy) goes dancing with his female friends at the Avilion ballroom.
But perhaps Namav himself said it best when he remarked that being in this position can, "...open up whole new layers of vision, a new way of life, and unique experiences. This doesn't mean I'm some hero engaged in some grand, daily struggle just because I'm incredibly vulnerable."
I don't know Namav, you seem pretty heroic to me; not because you are vulnerable, but because you've refused to let your body's physical limitations crush or silence your soul.


